When is enough, enough. I'm sorry, I'm in a self pity mode right now.
Karen is doing better, but tonight she was having difficulty breathing after they downsized her trache. She made it 4 days w/o the ventilator so they downsized her trache and capped it. For the first time since Jan 20 Karen was breathing on her own. However her sats dropped so they had to hook some oxygen back up to it. They are going to try for an hour off oxygen and then back on for an hour. They'll w...ork on trying to extend her time off of the oxygen as long her sats don't drop.
My dad is having heart surgery on Thurs at Barnes, and might be just across the hall from Karen.
Then tonight, Kiersten during PSR class at Holy Infant, had a pretty significant seizure. Of course it had to be in the middle of class with everyone watching as she then urinated all over herself and the floor so I had to race to go get her. She's wiped laying next to me. Nice! She never gets asked to play with any of the girls at school or go to any birthday parties and I don't think this will improve her chances. Kiersten is a good girl and right now my heart is breaking.
You know what's really troubling me, is that there are millions of people that have it worse than us and for that I'm sorry that I'm complaining.
How to Help
As you probably know, Karen is recovering from a double lung transplant. For a more detailed description of The McGinnis Family and everything they have been through, please see their story on the gofundme site, which is linked on the right of this page. If you would like to help, please see the list below of things that would really help them during this difficult time:
1. Thoughts and Prayers - This is most important to the family and they really appreciate everyone's thoughts and prayers! Please leave a comment on the blog for Karen to read!
2. Food - On this site is a link for the food calendar. There are no allergies and the only food that is not a favorite for all of them (but some of them do like it) is seafood.
3. Other Gift Cards - If cooking is not your thing, they would always be happy to have gift cards. The gas costs are piling up as the kids drive back and forth to the hospital. Grocery store gift cards and gift cards to places like Walmart or Target for household items would also be very much appreciated.
4. Monetary Donations - the GoFundMe site is also linked on the side of this page. They have recently found out that insurance isn't covering Karen's last hospital visit, which is costing more than $17,000! Also, they will be eating a lot at the hospital over the next several weeks and that money can add up as well. --If you would like to donate something but can't get it to their house (or mail it), please let me know and I would be happy to pick it up and deliver it to the family! stacey.grote@huschblackwell.com
Please see below for updates on Karen's progress. Go Karen, Go!
1. Thoughts and Prayers - This is most important to the family and they really appreciate everyone's thoughts and prayers! Please leave a comment on the blog for Karen to read!
2. Food - On this site is a link for the food calendar. There are no allergies and the only food that is not a favorite for all of them (but some of them do like it) is seafood.
3. Other Gift Cards - If cooking is not your thing, they would always be happy to have gift cards. The gas costs are piling up as the kids drive back and forth to the hospital. Grocery store gift cards and gift cards to places like Walmart or Target for household items would also be very much appreciated.
4. Monetary Donations - the GoFundMe site is also linked on the side of this page. They have recently found out that insurance isn't covering Karen's last hospital visit, which is costing more than $17,000! Also, they will be eating a lot at the hospital over the next several weeks and that money can add up as well. --If you would like to donate something but can't get it to their house (or mail it), please let me know and I would be happy to pick it up and deliver it to the family! stacey.grote@huschblackwell.com
Please see below for updates on Karen's progress. Go Karen, Go!
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